Bo’s mother, Laura, describes her pregnancy as normal, with the first instance of concern following her son’s birth when Bo needed oxygen. Following treatment, Mom and baby were home in 24 hours. However, Bo’s first 10 months of life were fraught with physical symptoms and developmental delays that led to numerous appointments with multiple professionals. And then the diagnosis came.
At 11 months of age, Bo was diagnosed with FOXG1, a rare neuro-developmental disorder that impacts every aspect of his physical body. Bo is unable to walk, sit, eat, or talk. He also experiences global development delays, seizures, sleep disturbances, high/low muscle tone, high pain tolerance, and more.
In isolation since last March, Laura notes, “I feel like the special needs community has already experienced and processed some of what the rest of the world was exposed to when COVID was first announced.” The complexity of Bo’s condition means that he and his family have had to isolate to varying degrees since his birth. However, the current pause in medical procedures, therapies and respite support means further medical complications and family stress. Nevertheless, this family’s positivity shines through; “everyday may not be good, but there is something good in everyday,” states Laura.
You can help relieve some of the burden for families like Bo and Laura’s by donating now.
Despite any difficulties the family may encounter as a result of Bo’s condition, Bo is said to “light up a room.”
“Bo is a happy, easy going, resilient and tough kid!” says Laura. He loves music, water, as well as his two brothers, Colton and Emmett, and the family’s two dogs and 16 chickens.
Bo was on Easter Seals’ waitlist for funding for a shower chair last year. Easter Seals had previously provided funding for another item when he was younger, which, according to Laura, “arrived during a stressful time when other funding options did not exist.” The family continues to appreciate the support provided by Easter Seals Ontario and its donors.
Laura is a member of the local schoolboard’s Special Education Advisory Committee and a regular participant in Easter Seals’ presentations. “It [is] such a feeling of relief…knowing that there [is] an organization out there fighting for our kids to just be kids… I want to help share the good work that [Easter Seals is] doing.”
Laura echoes the sentiments of many Easter Seals families; “THANK YOU! Because of you, kids like Bo are able to live in and experience their communities, their homes and their bodies.”
Help change the life of a child like Bo by donating now.