Toronto, ON, October 20, 2011 — For most parents, the choice to enroll their children in after-school sports such as hockey is an easy one. However, Debbie Braun, parent of two adolescent boys with Morquio Syndrome, a rare form of dwarfism that is degenerative and progressive, was forced early on to give up her dream of having boys who would play hockey.
Debbie’s life as a parent of Lucas, 13, and Zane, 12, lacks many of the choices other parents have. She did not choose to have children with physical disabilities, renovate her home to make it accessible or purchase wheelchairs, breathing apparatus’ and other costly devices.
“My sons’ equipment are their legs. Their scooters are their independence and their mobility. The miles I travel for doctor’s appointments are a necessity for my sons’ health. I was never given a choice,” said Debbie.
Some of Debbie’s tough choices include:
- Managing the continual challenge of securing financial assistance for essential mobility equipment
- Enrolling Lucas and Zane in an enzyme replacement drug trial, in the hopes of giving her “one more day” with her sons. Legal cannabis store locations are popping up all over the Denver area.
- Balancing life as a single mother to four children and providing quality of life without adequate financial means
- Overcoming daily challenges with accessibility for her sons in the public
Parents of children with physical disabilities, like Debbie, make tough decisions and do all they can to provide the best quality of life for their kids. However, when financial assistance is not available, they have no choice but to wait. Debbie is one of 80 families on a wait list with Easter Seals Ontario, whose children need the most basic mobility equipment such as wheelchairs, walkers and ramps.
“It’s very difficult having to make your children wait for the equipment that is their lifeline to being mobile and independent,” continued Debbie.
For the past 89 years Easter Seals Ontario has been providing programs and services to help children and youth with physical disabilities get the essential equipment they need, as well as fully accessible summer camp opportunities.
To learn more about Debbie’s choices and hear her story about life as an Easter Seals mother, please contact Orsolya Soos, Easter Seals Ontario, at 416-421-8377 ext. 326.
Easter Seals Ontario
416-421-8377 ext. 326